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What is
Chronic Inflammatory Demyelinating Polyneuropathy ?
Chronic inflammatory demyelinating polyneuropathy (CIDP) is a neurological disorder that involves progressive weakness and reduced sensitivity in the arms and legs. It is caused by damage to the fat-based protective covering on nerves. (myelin sheath)
Symptoms of CIDP are:
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Weakness of arms and legs
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Loss of deep tendon (muscle stretch) reflexes
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Fatigue
CIDP can happen at any age and in both genders but is more common in young adult men. CIDP is closely related to Guillain-Barré syndrome (in which the immune system mistakenly attacks the body) and is considered the long-term part of that disease. Treatment for CIDP include the use of steroid medicine and other treatments that focus on the immune system, along with physical therapy.
About 90% of people with CIDP improve with treatment, with a 50% relapse rate. A good long-term prognosis is possible for people diagnosed at a younger age.
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Chronic inflammatory demyelinating polyneuropathy (CIDP) is a disease that requires aid throughout one's entire life. Lenny Thomas leads a foundation addressing the pressing need for a cure to CIDP.
Recent statistics underscore a concerning rise in CIDP cases, with an increase of 15% reported in the past five years alone. This surge in diagnoses accentuates the immediate demand for targeted research and effective treatments. As CIDP intricately disrupts the peripheral nervous system, leaving individuals grappling with chronic pain and impaired motor functions, the urgency for a solution becomes more pronounced.
Lenny's foundation, dedicates its efforts to accelerating the quest for a cure. Beyond the quantitative data, personal stories amplify the human toll of CIDP, compelling the foundation to advocate tirelessly for increased awareness, support, and, ultimately, a breakthrough in the fight against this formidable illness. Lenny Thomas will use his story and platform to help aid the community in the fight for a cure.
With data as its driving force, Lenny's foundation stands resolute, transforming statistics into stories of triumph through research, empathy, and tangible solutions. Through research and story telling, the foundation looks to raise funds to support those struggling with funds for treatment and therapy, in order to create a bright future for the world.
"If you want to go fast, go alone. If you want to go far, go together."
Chronic Inflammatory Demyelinating Poly Neuropathy.
This is a debilitating condition that has affected my life in the deepest of ways.
Ways that I have silently powered through. Ways that have robbed me on many of my days of peace because the pain has been so great.
The foundation will specialize in informing people about CIDP, empowering those who live with it, and begin to accelerate the development of a cure. Furthermore, since my condition was exacerbated by trauma and loss, we will also focus on supporting therapy as well.
Donate Today.
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